Navigating the Health System
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Hello, everybody. Welcome to Health Chatter. Today's episode is how to navigate the health system with a very, very special guest. I'll let Clarence introduce her in a minute, so I'll keep you all guessing who she is. But in the meantime, I'd like to really thank our great background crew. And we really have a crew that's second to none. They work really, really well together. Sometimes when somebody can't do something, the other one picks up the ball and runs with it. So it's really, really good. And it makes our life, Clarence and my life, a lot easier in getting a successful health chatter show out to all of you. So thank you to Maddie Levine-Wolf, Aaron Collins, Deandra Howard, And Sheridan Nygaard for doing all our great background research on all our shows that give us some good talking points and things that sometimes Clarence and I would never think of. And so that's very well appreciated. Matthew Campbell is our production manager. Sheridan also does our marketing as well. So thank you to her. And thanks for doing our show today as well, Sheridan.
And then, of course, there's my great partner in crime, Clarence Jones. He and I have a great time doing this together. We've learned how to chat a lot better over all of these shows, but it's been really fun. And we really, really appreciate all of our guests that have been here. an integral part as well. So with that, we're going to get the show moving today, navigating the health system. And Clarence, I'll let you introduce our illustrious guest.
Thank you, Stan. And I'm glad you said illustrious because we have in the studio tonight, Ms. Melissa Winger. She's the author of the book, Who Cares? The Real Patient Experience. And she's talking about the experience of navigating, as she called, the broken health system. And Melissa and I have had the opportunity to be on a variety of different committees. And when she shared that she was the author of a book, I thought, this lady has something to tell us and something to say. And so she is appointed a member of the Healthcare Home Advisory Committee, the Emergency Medical Services for Children, family representative. She currently is on the American Academy of Pediatrics, the National Social Determinants Health Board, National Technical Advisory Committee on Screening Tools. Look, if I were... Listen, all the boards that she's on, I think I'd be here for the next 20 minutes. But the reason I'm really excited about it is that she's very, very passionate about this issue.
And so we're very, very excited to have you, Melissa. And we thank you for being here with us. And so with that, we would like to enter into this conversation with you about who cares. And you can share with us about your real patient experience.
Thank you so much. I am thrilled to be part of this podcast. It's a wonderful show, so I am honored to be on it. And yeah, just to start, I am not an author, not a writer. I don't know anything about publishing, but this was a story I needed to tell. And so that's when I took the journey on what it's like for the patient. And it is something that I have looked for on bookshelves for decades. and couldn't find it. I couldn't find it from the patient's perspective. And so that's why I'm like, I guess I have to write it. So I had to learn all about how to write, how to publish a book. And here we are, but it took about four years to get here.
So let's talk about it. Let's start from the beginning. Tell us how you entered into this conversation. What was it? What was the epiphany or the experience that you had that caused you to think about writing this book about who cares?
Yeah, I think it is. So I have a son who's now 27, who has medical complexities. And so that is why I am a patient advocate or patient parent representative or whatever the term is. Consumer, I think we're called at some point. And I realized that over the time that it isn't like other industries where the consumer voice is present in everything. And that's like other industries where you're purchasing products or services, healthcare is much different. And it's almost like the patient has to force themselves into the conversation. And it's a little backwards from other industries. And so that's what I've been doing for 10 plus years is
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