BackTable Urology
Ep. 199 Addressing Isolation and the Psychosocial Needs of Penile Cancer Patients with Rob Cornes and Rick Bangs
Tue, 12 Nov 2024
How do you care for patients with penile cancer? As urologists, we’re trained to think about diagnosis and treatment, but how can we help manage the psychological impacts of penile cancer? In this episode of BackTable Urology, host Dr. Ben Ayres, a urologic oncologist specializing in penile cancer, discusses the unique psychological challenges faced by penile cancer patients with bladder cancer survivor Dr. Rick Bangs and nurse Rob Cornes. --- This podcast is supported by: Photocure https://www.photocure.com/ --- SYNPOSIS This episode emphasizes the importance of awareness and peer support in reducing isolation and stigma associated with penile cancer. The conversation also explores the role of multidisciplinary care and the benefits of holistic approaches to patient decision-making. --- TIMESTAMPS 00:00 - Introduction 04:05 - Isolation in Penile Cancer 06:38 - The Role of Advocacy and Peer Support 15:29 - Shared Decision Making in Penile Cancer Care 23:22 - Value of Multidisciplinary Care --- RESOURCES Photocure https://www.photocure.com/ Global Society of Rare GU Tumors (GSRGT) https://www.gsrgt.com
Full Episode
We know that TURBT procedure is critical in the care of patients with non-muscle invasive bladder cancer. With data that shows that CIS was missed by TURBT in more than 45% of radical cystectomy cases and 86% of residual tumors have been found at the original resection site, it's clear that enhanced visualization could be a significant benefit during TURBT's.
Further, with only 23% of patients coming back for re-resection, it's all the more important to do a complete TURBT right from the start.
In the real world, you're not going to have to provide everybody with everything they need, especially around penile cancer. But if you can promote that sort of online or virtual meeting or support, these groups will have people who can offer tips or advice on how they manage that situation.
plus the actual psychological benefit of being able to reach out and express your worries or fears amongst people who know. And on that group as well, there's a lot of partners and family members who will also post or ask questions on patients' behalf.
So I think we have to really foster and promote peer support, whatever exists in penile cancer, because it is a way we can meet some unmet clinical needs.
Hello, everyone, and welcome back to the Backtable podcast, your source for all things urology. You can find all previous episodes of our podcast on iTunes, Spotify, and at backtable.com.
Hello and welcome to this podcast on the unmet psychological needs in penile cancer. I'm Ben Ayres. I'm a consultant urological surgeon working in London in the United Kingdom and I specialize in managing patients with penile cancer. We do have a centralized service in the UK and therefore we end up at our center gaining a lot of experience in managing these patients.
I'm delighted to be joined this evening by my two colleagues and I'll let them introduce themselves. So Rick, please say hello to the audience.
Hi, I'm Rick Bangs and it's really a pleasure to be here. I'm a survivor of bladder and prostate cancer. I do a fair amount of research advocacy in my retirement years, post-corporate, and mostly around clinical trials. I've worked with the National Cancer Institute and the Swag Cancer Research Network. And I also work with my peers.
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