Rob Cornes
👤 PersonAppearances Over Time
Podcast Appearances
In the real world, you're not going to have to provide everybody with everything they need, especially around penile cancer. But if you can promote that sort of online or virtual meeting or support, these groups will have people who can offer tips or advice on how they manage that situation.
In the real world, you're not going to have to provide everybody with everything they need, especially around penile cancer. But if you can promote that sort of online or virtual meeting or support, these groups will have people who can offer tips or advice on how they manage that situation.
In the real world, you're not going to have to provide everybody with everything they need, especially around penile cancer. But if you can promote that sort of online or virtual meeting or support, these groups will have people who can offer tips or advice on how they manage that situation.
plus the actual psychological benefit of being able to reach out and express your worries or fears amongst people who know. And on that group as well, there's a lot of partners and family members who will also post or ask questions on patients' behalf.
plus the actual psychological benefit of being able to reach out and express your worries or fears amongst people who know. And on that group as well, there's a lot of partners and family members who will also post or ask questions on patients' behalf.
plus the actual psychological benefit of being able to reach out and express your worries or fears amongst people who know. And on that group as well, there's a lot of partners and family members who will also post or ask questions on patients' behalf.
So I think we have to really foster and promote peer support, whatever exists in penile cancer, because it is a way we can meet some unmet clinical needs.
So I think we have to really foster and promote peer support, whatever exists in penile cancer, because it is a way we can meet some unmet clinical needs.
So I think we have to really foster and promote peer support, whatever exists in penile cancer, because it is a way we can meet some unmet clinical needs.
Hi, thanks. I'm a nurse specialist based in the UK working for a small male cancer charity called Orchid. I'm also a patient advocate representative for ERNE Urogen, which is a European organisation for rare network diseases, and also a patient advocate and representative for penile cancer with the European Association of Urology Patient Advocacy Group.
Hi, thanks. I'm a nurse specialist based in the UK working for a small male cancer charity called Orchid. I'm also a patient advocate representative for ERNE Urogen, which is a European organisation for rare network diseases, and also a patient advocate and representative for penile cancer with the European Association of Urology Patient Advocacy Group.
Hi, thanks. I'm a nurse specialist based in the UK working for a small male cancer charity called Orchid. I'm also a patient advocate representative for ERNE Urogen, which is a European organisation for rare network diseases, and also a patient advocate and representative for penile cancer with the European Association of Urology Patient Advocacy Group.
Yes, thanks, Ben. So I think the first thing is that we need to realise that penile cancer, although exceptionally rare, will have the biggest consequences from physical and psychological wellbeing. All curative treatment is going to involve some form of surgery.
Yes, thanks, Ben. So I think the first thing is that we need to realise that penile cancer, although exceptionally rare, will have the biggest consequences from physical and psychological wellbeing. All curative treatment is going to involve some form of surgery.
Yes, thanks, Ben. So I think the first thing is that we need to realise that penile cancer, although exceptionally rare, will have the biggest consequences from physical and psychological wellbeing. All curative treatment is going to involve some form of surgery.
So men are going to have to live not only with an altered body image and physical problems in their everyday life or readjusting to various habits that they've got used to over their lifetime, But there's also a big impact of isolation. And I think this is overlooked to some degree.
So men are going to have to live not only with an altered body image and physical problems in their everyday life or readjusting to various habits that they've got used to over their lifetime, But there's also a big impact of isolation. And I think this is overlooked to some degree.
So men are going to have to live not only with an altered body image and physical problems in their everyday life or readjusting to various habits that they've got used to over their lifetime, But there's also a big impact of isolation. And I think this is overlooked to some degree.
So if I give you an example, if you're diagnosed with prostate cancer, which is the most common cancer in men, the chances are that you'll probably know somebody maybe in your neighborhood who's been affected. or a friend or a colleague who knows somebody who's been affected.
So if I give you an example, if you're diagnosed with prostate cancer, which is the most common cancer in men, the chances are that you'll probably know somebody maybe in your neighborhood who's been affected. or a friend or a colleague who knows somebody who's been affected.