Nicole Jorwic

And I can say this. I'm coming out of a two-week period of doing actual direct care myself for different generations of my family. I have my grandma who has Parkinson's. I was down taking care of her. Came directly to help my mom who had her knee replaced. did and stayed with her for a few days and then had my brother come and stay with my husband and I so that my mom could have a break.

And I can say this. I'm coming out of a two-week period of doing actual direct care myself for different generations of my family. I have my grandma who has Parkinson's. I was down taking care of her. Came directly to help my mom who had her knee replaced. did and stayed with her for a few days and then had my brother come and stay with my husband and I so that my mom could have a break.

And I can say this. I'm coming out of a two-week period of doing actual direct care myself for different generations of my family. I have my grandma who has Parkinson's. I was down taking care of her. Came directly to help my mom who had her knee replaced. did and stayed with her for a few days and then had my brother come and stay with my husband and I so that my mom could have a break.

And let me tell you what, I did not have anything left to give. And I'm somebody who knows what caregiving is. So I knew I could name it, but that doesn't mean that it isn't hard, but there's so many people that can't even name it. I have sat in so many conversations with journalists or with consultants that we're working with where they'll say, yeah, I'm not really a caregiver though.

And let me tell you what, I did not have anything left to give. And I'm somebody who knows what caregiving is. So I knew I could name it, but that doesn't mean that it isn't hard, but there's so many people that can't even name it. I have sat in so many conversations with journalists or with consultants that we're working with where they'll say, yeah, I'm not really a caregiver though.

And let me tell you what, I did not have anything left to give. And I'm somebody who knows what caregiving is. So I knew I could name it, but that doesn't mean that it isn't hard, but there's so many people that can't even name it. I have sat in so many conversations with journalists or with consultants that we're working with where they'll say, yeah, I'm not really a caregiver though.

I just like schedule all the appointments, take them to them, make sure that they have food. And I like watch the realization that they realize that they're a caregiver. And while it doesn't have to be an identity that everybody takes on, it actually is really important that we recognize it and also name it because it is hard. And it doesn't have to be that way if we had systems that were in place

I just like schedule all the appointments, take them to them, make sure that they have food. And I like watch the realization that they realize that they're a caregiver. And while it doesn't have to be an identity that everybody takes on, it actually is really important that we recognize it and also name it because it is hard. And it doesn't have to be that way if we had systems that were in place

I just like schedule all the appointments, take them to them, make sure that they have food. And I like watch the realization that they realize that they're a caregiver. And while it doesn't have to be an identity that everybody takes on, it actually is really important that we recognize it and also name it because it is hard. And it doesn't have to be that way if we had systems that were in place

to actually care so that care was a choice, right? If every disabled person and every aging adult in this country had a system in place to get that home-based care that they needed when they need it, then family members can just be filling in the gaps instead of being the actual system.

to actually care so that care was a choice, right? If every disabled person and every aging adult in this country had a system in place to get that home-based care that they needed when they need it, then family members can just be filling in the gaps instead of being the actual system.

to actually care so that care was a choice, right? If every disabled person and every aging adult in this country had a system in place to get that home-based care that they needed when they need it, then family members can just be filling in the gaps instead of being the actual system.

Well, right now, we know that 95% of disabled people want to stay in their homes and communities and 90% of older adults want to age in place. That is not what the funding structure looks like. So if I could wave my magic wand, I would at least make sure that the funding for long-term care in this country matched what people want.

Well, right now, we know that 95% of disabled people want to stay in their homes and communities and 90% of older adults want to age in place. That is not what the funding structure looks like. So if I could wave my magic wand, I would at least make sure that the funding for long-term care in this country matched what people want.

Well, right now, we know that 95% of disabled people want to stay in their homes and communities and 90% of older adults want to age in place. That is not what the funding structure looks like. So if I could wave my magic wand, I would at least make sure that the funding for long-term care in this country matched what people want.

There have been decades, including a lot of work from the National Political Advocacy Department at ACLU, trying to make sure that we're working on rebalancing, getting more money into the home and community. But even in the best performing states, like the New Yorks and the Californias, it's barely maybe 60% of the funding that's going to that. So that would be one way that I would change it.

There have been decades, including a lot of work from the National Political Advocacy Department at ACLU, trying to make sure that we're working on rebalancing, getting more money into the home and community. But even in the best performing states, like the New Yorks and the Californias, it's barely maybe 60% of the funding that's going to that. So that would be one way that I would change it.

There have been decades, including a lot of work from the National Political Advocacy Department at ACLU, trying to make sure that we're working on rebalancing, getting more money into the home and community. But even in the best performing states, like the New Yorks and the Californias, it's barely maybe 60% of the funding that's going to that. So that would be one way that I would change it.

And I could go into the whys, but I won't go into it. But that would be one way to quickly address the almost million people that are on waiting lists for these services.

And I could go into the whys, but I won't go into it. But that would be one way to quickly address the almost million people that are on waiting lists for these services.