Aria Bendix

Advocates say this was a low-cost, high-reward effort that won't make much of a dent in the federal budget.

Advocates say this was a low-cost, high-reward effort that won't make much of a dent in the federal budget.

These are really severe and debilitating childhood diseases that often don't result in survival beyond the teen years unless a child has access to early treatment. So it's unclear why something like this would be cut.

These are really severe and debilitating childhood diseases that often don't result in survival beyond the teen years unless a child has access to early treatment. So it's unclear why something like this would be cut.

A lot of the grants were terminated on the grounds that they don't align with the new administration's priorities.

A lot of the grants were terminated on the grounds that they don't align with the new administration's priorities.

Columbia University was one of the sites participating in the study, and it handled the bulk of the funding. So the researchers now say they can't do blood work, brain scans, urine samples, all the things that are necessary to study patient outcomes. And they're also really worried about the ability to preserve the data sets that they've already collected.

Columbia University was one of the sites participating in the study, and it handled the bulk of the funding. So the researchers now say they can't do blood work, brain scans, urine samples, all the things that are necessary to study patient outcomes. And they're also really worried about the ability to preserve the data sets that they've already collected.

Advocates say this was a low-cost, high-reward effort that won't make much of a dent in the federal budget.

These are really severe and debilitating childhood diseases that often don't result in survival beyond the teen years unless a child has access to early treatment. So it's unclear why something like this would be cut.

A lot of the grants were terminated on the grounds that they don't align with the new administration's priorities.

Columbia University was one of the sites participating in the study, and it handled the bulk of the funding. So the researchers now say they can't do blood work, brain scans, urine samples, all the things that are necessary to study patient outcomes. And they're also really worried about the ability to preserve the data sets that they've already collected.